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HUMAN RIGHTS | DEBATS | PARENTAL CONSENT | REGRET | TRAUMA/PAIN
Hypospadie: Should Surgery for Hypospadias Be Performed Before An Age of Consent? (Abstract, Adrienne Carmack, Lauren Notini, Brian D. Earp, in: The Journal of Sex Research Volume 53, 2016 – Issue 8, pp. 1047-1058)
HUMAN RIGHTS
Intersex human rights (2019, Bauer, Markus, Truffer, Daniela (beide Zwischengeschlecht.org & StopIGM.org, Zurich, Switzerland) Crocetti, Daniela, Bar Ilan University, https://www.researchgate.net/publication/336534465, DOI: 10.1080/13642987.2019.1671354, 43 p., pdf).
DEBATS
L’enfant intersexué : dysphorie entre le modèle médical et l’intérêt supérieur de l’enfant (2015, Wilcox, A., Côté, I., Pagé, G., dans : INTERVENTION 2015, numéro 142 : 65-77, pdf) : À la naissance d’un enfant dont le sexe semble atypique, les parents sont confrontés à une vision généralement pathologisante de l’état de leur enfant par le milieu médical. Celui-ci estime ainsi justifié de poser des actes médicaux irréversibles sur le corps d’enfants qui ne peuvent donner leur consentement éclairé. Ces interventions viseraient, entre autres, de permettre aux parents de s’attacher à leur enfant ce qui est, au sens clinique, une aberration dans le contexte de la création d’un lien d’attachement sécurisant pour un enfant. Normaliser le corps [le sexe] d’un enfant afin qu’il soit conforme à une idéalisation parentale et sociétale va à l’encontre de la théorie de l’attachement. Car pour qu’un enfant puisse développer une relation d’attachement sécurisante, c’est au parent de s’adapter et répondre aux besoins de l’enfant et non l’inverse […].
L’intersexuation (2022, Studio Lacan. Émission 4. Invités : Dr Blaise Meyrat et Benjamin Moron-Puech – Sur l’intersexuation, YouTube, 49min.09)
Les variations du développement sexuel (2019, Blaise Meyrat, Journée Bioéthique, YouTube, 7min.26)
PARENTAL CONSENT
Boundaries of Parental Consent: The Example of Hypospadias Surgery (Roen, Katrina, Sterling, Rogena 2023. Boundaries of Parental Consent: The Example of Hypospadias Surgery. Social Sciences
12: 677. https://doi.org/10.3390/socsci12120677, 13 p., pdf): Human rights organisations raise concerns about medical interventions on children with intersex variations, particularly when these interventions impinge on the child’s bodily autonomy and are without a sound biomedical basis. Psychosocial literature and legal literature have made very different contributions to thinking about the healthcare of people with intersex variations, but both literatures pay attention to the process of informing patients about elective interventions and the workings of consent. The present paper addresses the absence of dialogue across medical, legal, and psychosocial literatures on the surgical treatment of children with intersex variations.
REGRET
Parental decisional regret after surgical treatment in young boys born with hypospadias (2021, J Pediatr Urol. 2021 Oct;17(5):691.e1-691.e7. doi: 10.1016/j.jpurol.2021.06.020. Epub 2021 Jul 1, pdf)
Parental decision regret in childhood hypospadias surgery: A systematic review (2020, Vavilov, S. et al., in: Journal of Paediatrics and Child Health , DOI: 10.1111/jpc.15075, pdf, abstract)
TRAUMA/PAIN
Early Neonatal Pain—A Review of Clinical and Experimental Implications on Painful Conditions
Later in Life (2020, Williams, MD and Lascelles, BDX, in: Front. Pediatr. Sec. Children and Health.doi: 10.3389/fped.2020.00030, 18 p., pdf)
Experiences of medical traumatic stress in parents of children with medical complexity (2022, Dewan, T. et al. (2023): Experiences of medical traumatic stress in parents of children with medical complexity, Child : Health, Care and Development, 2023 Mar; 49(2): 292–303. Published online 2022 Aug 29. doi: 10.1111/cch.13042, pdf): arents of children with medical complexity (CMC) experience high levels of stress and adverse mental health outcomes. Pediatric medical traumatic stress (PMTS) could be an important contributor that has not yet been explored. PMTS describes parents‘ reactions to their child’s illness and medical treatment and can lead to post-traumatic stress symptoms. This is the first study to describe the experiences and impact of PMTS among parents of CMC.
Neonatal pain (2013, Walker, S.M., Paediatr Anaesth.; 24(1):39–48. doi: 10.1111/pan.12293, pdf)
Posttraumatic stress disorder and the nature of trauma (2000, Bessel van der Kolk, in: Dialogues Clin Neurosci. 2000 Mar;2(1):7-22.doi: 10.31887/DCNS.2000.2.1/bvdkolk., pdf, 16 p.)
Prevention and Management of Procedural Pain in the Neonate: An Update. (2020, COMMITTEE ON FETUS AND NEWBORN and SECTION ON ANESTHESIOLOGY AND PAIN MEDICINE, in: Pediatrics. 2016;137(2): e20154271, pdf).
THE BODY KEEPS THE SCORE: Memory and the evolving psychobiology of post traumatic stress
(1994, Bessel van der Kolk, Harvard Medical School, pdf, 22 p.)
The Neurobiology of Pain: Developmental Aspects (2001, Fitzgerald, M., Beggs, in: The Neuroscientist.7(3):246–257, pdf, 12 p.)